Chaotic Spoonie Hacks: Fart Machine
In cases where it's safe to do so, I like to cause some slight chaos for entertainment. On that note, you can purchase remote control fart machines online.
My favorite PEG tube products
There is an abundance of products for PEG tubes and PEG tubes themselves! I've had a tube since early 2016 and I've used a lot of products and tube types!
PEG tube basics: care & complications
Particularly because of the location, daily care of your stoma (the hole the tube is in) is required to keep it healthy and prevent skin irritation and infections. Much like the first time you use it, it can seem intimidating but it's quite simple!
Remember to always wash your hands before and after doing anything with the site!
PEG tube basics: usage
Feeding
Using a PEG tube may seem scary and intimidating at first, but it's easy once the anxiety goes away!
Most tubes have adapters with two or three ports; the balloon type has three, and the ones without a balloon have two. NEVER use the smaller port that goes to the balloon; only use the larger ports (they usually have a cap to close them.
4 Unexpected changes after my injuries (and 5 ways I've adapted to them!)
The brain controls everything, so of course when there's a brain (or spinal cord) injury, the entire body is affected. I've lived with this for nearly eight years now and some adaptations are fairly obvious: using a wheelchair, for example; some of them were unexpected and took some time to figure out how to adjust and adapt to. Here are [#] of unexpected changes and how I adapted to them.
Maximize your appointment time
With such a tight schedule, a little bit of prior planning will go a long way!
Spoonie Life Hack - Positive Self-talk
I wanted to take positive self-talk and affirmations to the next step and add a modern twist! After writing them down or saying them outloud, I've created phone wallpapers with them.
Dopamine Playlists
Listen - sometimes the world is a difficult place and we just want to crawl into a comfy spot and watch something and not think for a while. I hear you and I've thought of how to make a life hack for it!
Blueberry Probiotic Smoothie
I experimented with different smoothies for breakfast and this was my favorite that became a staple - my nutritionist even started giving it to her other patients!
Guide to seeing a new doctor
Though a lot of the outcome will depend on your doctor, I’ve developed a system of things I do before seeing a new doctor that help me feel more prepared and help me use my (often limited time) the best that I can.
7 tips to stay cool during the summer
There’s a lot of places experiencing a heat wave right now – which can be especially dangerous for us spoonies! Here are 7 tips for staying cool: