Autosomal Dominant Hypercalciuria
Simply put, autosomal dominant hypercalciuria is a rare genetic condition that causes the calcium receptors in the kidneys to take too much calcium out. This often causes the kidneys to leach calcium from the bones, leading to osteoporosis and osteopenia and hypercalciuria (high levels of calcium in the urine). This can cause recurring kidney stones, UTIs, and abnormal levels of calcium and other minerals in the body.
ABLE accounts
With disabilities, the income and asset restrictions for SSI and Medicaid, it's usually impossible to save up for anything! I'm sure I'll discuss how outdated the caps are in a future post, but for now, I want to discuss something that many people - including those who qualify - don't know about: ABLE accounts.
New Rule: don't be ableist on TV
TW: ableism, hatred, ageism, fatphobia, ableist slurs - also directed to CHILDREN
New rule: hateful people get de-platformed.
Though Bill Maher mostly got famous for roasting Republicans, he's made sure that everyone knows he can be just as hateful as a conservative, while still being an atheist who likes weed.
My Skincare Collection
Over the years, I've tried many products and have found a few that I always keep around and use often as well as some that I use when I'm having a particularly rough time.
Elon Musk has an ableism problem
TW: Ableism, Aspie supremacy
Elon Musk, the richest man in the world with a staggering net worth of $238 billion, has as much money as he does controversy and problematic behaviors. Though there's no shortage of criticism I could give, I'd like to focus on his ableist views, behaviors, and remarks.
Beginner's Guide to Supporting Chronically Ill Loved Ones
While there's often no clear answers and it varies depending on the individual, the condition, and so much more, but there are many things that are universally good to support your loved ones.
Tick Diseases
Aside from being extremely annoying and covering you in the most itchy bites I've experienced, they carry a lot of diseases! These diseases are nasty; many cause lasting damage and are just sheer misery!
Fireworks aren't always fun
they are serious triggers for neurodiverse people, those with PTSD (veterans and those who have experienced violence), those with breathing difficulties, people who suffer from headaches, and those who are generally sensitive to loud noises.
HIV Epidemic
The first cases of HIV/AIDS in the US were gay men and some of the opportunistic infections were nicknamed things like "Gay Man's Pneumonia" and Kaposi's Sarcoma, a type of cancer often seen in AIDS patients, was nicknamed "gay cancer".
Don't let bugs bug you: summer safety
Prevention is ALWAYS the best option when dealing with diseases. Thankfully there are several things that you can do to prevent bug bites
Queer Disabled People in History
Disabled people and queer people alike are both likely to be hidden, but both have existed for as long as humanity has - as have queer disabled people. Those who rose to historical prominence often have those parts of their identities shrouded by the world - or at least it's attempted.
Emeryl Redwine
Emeryl is a nonbinary queer artist with multiple conditions, including: anxiety, insomnia, digestive issues, and dysmenorrhea. They predominantly do fantasy artwork that is inspired by anime, comic books, and video games to develop their own personal style.
Andrew Gurza
Andrew Gurza is a Canadian disability awareness consultant with Cerebral Palsy who focuses a lot of his work in sex positivity and sex education in regards to the sex lives of disabled people.
Jessica Kellgren-Fozard
Jessica is a British YouTuber based in Brighton, England. She is probably best known for her videos on disability, queerness, and vintage fashion. She has multiple disabilities, including: Ehlers-Danlos Syndrome (EDS), post orthostatic tachycardia syndrome (POTS), Hereditary neuropathy with liability to pressure palsy (HNPP), and is deaf as a result.
Through the darkness and into the light (plain text/draft)
The story of trying and failing to get help for chronic UTIs and kidney stones, before finally getting the help I needed - but almost too late.
Celebrating & Mourning My Voice
I sung everywhere: in the shower, in the car, in my room, and on stages. I've sung for graduations, competitions, basketball games, and to my dogs.
But when I woke up on February 17 of 2016, when I tried to ask my mom where I was, nothing came out.
Mental Health Metal
Metal music has a bad reputation of being a generally negative genre; but behind the screaming, heavy drums and guitars, there's actually a lot of good being done.
Remembering Thomas
He should be celebrating his 30th birthday today; instead, he's been gone over 13 years.
Neurodivergent Love Languages
While these aren't official, it is another pattern in human behavior; it's really helpful to learn how neurodivergent people communicate and show affection that may differ from the general ways.
‘Til Disabled Do Us Part
We had discussed plans for when he got back to the US and his upcoming trip to a different country before flying in. He talked to me to tell me that he had gotten his passport and was on a train.
Then there was nothing.