Ask Aunt Lori: most asked questions about my PEG tube
Feeding tubes seem to be something that is very interesting to most people and I've been asked about it a lot! Though there are some that I haven't been asked much, a few come up often.
Why did you get a PEG tube?
I developed dysphagia (difficulty swallowing) after my neurological injuries. I initially had an NG tube, but it wasn't very comfortable and clogged easily.
Can you taste what is put in the tube?
Thankfully not! The taste buds are located on the tongue, so I don't have anything to taste it with. I can only taste what is put down it if I burp it up or vomit - hopefully I don't do either!
I don't miss the taste of some medications (magnesium citrate and robitussin especially)....
Can you eat or drink anything?
Yes! Right now, I'm able to eat all my necessary calories and nutrients and drink nectar thick liquids and even some regular drinks sometimes with supplemental hydration. However, I can't swallow pills and if I'm tired, sick, or in pain, my dysphagia worsens. If I tried to keep up with the necessary amount of drinking required to stay hydrated, it would take up all of my time!
For a while, I wasn't able to drink or eat anything and was exclusively tube fed. I gradually improved and was able to add food and drinks back.
Will you always have a PEG tube?
Most likely, yes. My neurological injuries are permanent and even though I've made significant improvements, there will always be some issues. Having the tube as an option is a lot safer than not having anything. They can be annoying sometimes, but they are helpful!
Are PEG tubes reversible?
Yes! PEG tubes are easily reversible, often they close up on their own without needing stitches.
How long does it last?
As long as there aren't any issues with the stoma, you'll only have to get the incision for it once. Each PEG tube is good for about a year before they need to be replaced. If you have an infection, it gets dislodged, or some other issue, it might not last a full year.
Can you feel it all the time?
Most of the time, no. When it's not in use, I only occasionally feel it. I can sometimes feel the temperature of the liquids being put in it, but in general, I don't feel it when I'm not having any issues and it's not accidentally tugged. I'm always vaguely aware of it, but I'm accustomed to it now.
Have questions you want me to answer? Fill out my Google form here and select "Ask Aunt Lori"! No judgment, just ask away!
